got Lymphedema? Get LympheDIVAs…

 

Lymphedema is a potential side effect of breast cancer treatment (most   commonly caused by the removal of or damage to lymph nodes) that can cause permanent swelling of the arm and hand.  Swelling can range from mild and hardly noticeable to extreme making it difficult to use the affected arm and hand. Lymphedema can occur months or years after cancer treatment.

 

To help control swelling, physicians and lymphedema therapists often recommend a compression sleeve (for the arm) and/or gauntlet (for the hand).  But here’s the dealio (as my daughter always says)…. many compression sleeves & gauntlets are rough, heavy, hot  & beige.  Ugh! Talk about adding insult to injury.  

 

Solution:  LympheDIVAs- lighter, breathable, stylish compression sleeves and gauntlets that come in tons of great patterns including hot pink, leopard print, tie-dye and even a funky tattoo pattern to name a few. It’s where fashion meets necessity.  

 

LympheDIVAs compression sleeves & gauntlets are made using a  moisture-wicking technology, which pulls sweat away from the body and is fast drying.  The fabrics are latex and silicone-free and they contain encapsulated aloe vera, which moisturizes your skin and keeps your arm cooler.  These products are designed to fit a wide range of sizes and will stretch as your arm bends and flexes.  BTW, LympheDIVAs was also founded by 2 breast cancer survivors.

 

To learn about these medically-necessary but hip & fabulous products, visit LympheDIVAS.com.

*** BTW, if you ever start to notice any swelling, contact your doctor immediately.  


Tools that Keep Track of Vital Information

Knowledge is power…. and when it comes to cancer, knowing and keeping track of the different procedures, doctors, scans, results, treatment plans, hospitalizations, medication history, etc is crucial.

 

Check out these tools designed to help patients & caregivers not only organize vital information, but make it readily accessible:

I LOVE The Medical Day Planner (just published in April, 2012).  

This planner is a book that not only helps track vital information, but it shares information and tips that can help patients & caregivers better navigate the medical maze.  It contains information on writing advanced health care directives, tax deductibility of medical expenses, what to ask when looking into assisted-living facilities, and much more.  Check out www.allthingscaregiver.com for more information and a GREAT blog.

 

BTW, The Medical Day Planner will also have an iPhone app available soon.  It will allow patients & caregivers to track the same info as the book but it also will have a “share” button allowing the user to send vital information to other caregivers, save photos of medications and upload test/scan results. AMAZING!

 

 

LIVESTRONG created a “Cancer Guide + Tracker App” for 

the iPAD (released about 6 months ago), which let’s you store and access information relevant to your treatment electronically.  There’s a MY JOURNAL section and a TRACKER section for tracking appointments, treatments, medication schedules & symptoms. Users can also link to confidential, one-on-one support provided by Livestrong’s Cancer Navigation Center staff for issues as diverse as dealing with emotions and managing debt to fertility preservation & post treatment concerns.  (Don’t have an iPad? You can order a LIVESTRONG Guidebook- just visit www.livestrong.org/guidebook for more information.) 

 

Man o’ man,  I wish some of these tools had existed while we were battling Alan’s cancer….

 


Tips to Avoid Potential Cancer-Causing Chemicals…

MEET GUEST BLOGGER Jenna Catalona of First Descents …  First Descents (FD) is an amazing outdoor adventure therapy camp for young adult cancer survivors.  After graduating from Kent State University in 2011, Jenna wanted to find work with an organization that had a truly meaningful purpose, and when she discovered First Descents, she knew this was the place where she could work to make a difference!   

 

BPA, Phthalates, and Xenoestrogens are three common chemicals known to be hormone disruptors, estrogen mimickers, and endocrine disruptors which are wreaking havoc on human’s health today!

Recently, the U.S. FDA is expressing concerns about possible health risks from bisphenol A, or BPA, a widely used component of plastic bottles and food packaging. The agency declared BPA safe in 2008.

Even Low Levels of BPA have been linked to:

  • Prostate cancer and breast cancer
  • Diabetes and obesity
  • Altered immune function
  • Early sexual development in girls and disrupted reproductive function
  • Learning and behavioral problems, including hyperactivity
  • Decreased Sperm Count and other related fertility problems
  • Abnormal heart rhythms and cardiac abnormalities

10 Tips to Help You Minimize Your BPA Exposure

Until there are regulations to protect you, here are a few things you can do to protect yourself and your family:

1.  Boycott plastic shopping bags!!!   Use reusable canvas or cloth varieties instead. (This also applies to the plastic produce bags in the grocery store.)
2.   Store your food and beverages in glass containers, not plastic.
3.   If you choose to use a microwave (which has it’s own health issues) don’t microwave food in plastic containers.
4.   Stop buying and consuming canned foods and drinks (the can linings contain plastic chemicals.)
5.   Avoid using plastic wrap altogether.
6.   Replace your plastic dishes and cups with glass varieties. And never drink a warm/hot drink from a plastic cup.
7.   Avoid using plastic cups, utensils, dishes, and food storage containers. There are some containers being labeled “BPA-free,” so keep an eye out for those if you choose to use plastic.
8.   Avoid drinking bottled water. Instead, filter your own water and put it in a glass bottle.
9.   Before allowing a dental sealant to be applied to you or your children, ask your dentist to verify that it does not contain BPA.
10.  Use only glass baby bottles and dishes. Use cloth diapers instead of plastic. And give your baby non-plastic toys, like varieties that are made of fabric.

**  Click HERE for a great article from Dr. Mercola regarding more on BPA.

Phthalates (plasticizers) are a group of industrial chemicals used to make plastics like polyvinyl chloride (PVC) more flexible and resilient. They’re one of the most pervasive of the endocrine disrupters.

Phthalates are found in, among other things:

  • Processed food packaging
  • Hoses
  • Raincoats
  • Shower curtains
  • Vinyl flooring and wall coverings
  • Lubricant and adhesives
  • Detergents
  • Beauty products like nail polish, hair spray, shampoo, deodorants, and fragrances (look for “parabens”)
  • Toys

Here are a number of practical techniques you can use to limit your exposure to endocrine disruptors and other common toxins:

1.    As much as possible, buy and eat organic and free range foods, especially meats, dairy and produce,  to reduce your exposure to pesticides and fertilizers.
2.   Rather than eating conventional or farm-raised fish, which are often heavily contaminated with PCBs and mercury, supplement with a high-quality purified fish or krill oil, or eat fish that is wild-caught and lab tested for purity.
3.  Eat mostly raw, fresh foods, steering clear of processed, prepackaged foods of all kinds. This way you automatically avoid artificial food additives of all kinds, including dangerous artificial sweeteners, food coloring and MSG.
4.  Store your food and beverages in glass rather than plastic, and avoid using plastic wrap.
5.  Have your tap water tested and, if contaminants are found, install an appropriate water filter on all your faucets (even those in your shower or bath).
6.  Only use natural cleaning products in your home. (Check out Earth Friendly Products at http://www.ecos.com/)
7.  Switch over to natural brands of toiletries such as shampoo, toothpaste, deodorants and cosmetics. The Environmental Working Group has   a great safety guide to help you find personal care products that are free of phthalates and other potentially dangerous chemicals.
8. Avoid using artificial air fresheners, dryer sheets, fabric softeners or other synthetic fragrances.  This group is high in chemicals!!
9.  Replace your Teflon cookware with ceramic or glass cookware. Or use cast iron when appropriate.
10.  When re-doing your home, look for “green,” toxin-free alternatives in lieu of regular paint and vinyl floor coverings.
11.  Replace your vinyl shower curtain with one made of fabric.

** For more information on phthalates, click HERE.

Xenoestrogens are synthetic chemicals that mimic natural estrogens, and have been linked to a wide range of human health effects.

There are so many of them, and they’re used in so many common consumer products that trying to avoid them may seem like a fruitless struggle. For example, you come in contact with hormone disrupting chemicals through:

  • Pasteurized dairy, which commonly contains bovine growth hormones
  • Soy products, which are loaded with hormone like substances
  • Plastics – many of which contain bispenol A
  • Personal care products that contain phthalates
  • Cooking with Teflon-coated pots and pans

And now you can add certain common food additives to the list, including one called propyl gallate, which has been used for decades as a preservative and now found to cause many problems in gene expression.

It is commonly found in: hair products, soaps, lotions, cosmetics, adhesives and lubricants, processed meats and meat products and potato products, chicken soup base, chewing gum and candy, dried milk, baked goods and more.

In addition to being an endocrine disrupter, based on this latest analysis, the results in a previous study by the U.S. Department of Health and Human Services showed that propyl gallate caused various types of cancer and other health problems in rats, including:

  • Thyroid tumors in male rats
  • Rare brain tumors in low-dose females
  • Prostate inflammation
  • Mostly benign tumors of the preputial gland (glands that produce pheromones)
  • Pancreatic tumors
  • Adrenal gland tumors in low-dose males

If you have children, xenoestrogens are clearly something you will want to avoid. Here are some measures you can take to protect you and your children from common toxic substances that could cause them to go into puberty more than a decade before they were designed to:

1.)  Store your food in glass containers whenever possible, as it is the most inert container you can use.
2.) Only use natural cleaning products in your home. Most health food stores will have these available or you can search online for them.
3.) Buy and eat, as much as possible, organic foods, especially milk and other dairy products which are frequently contaminated with bovine growth hormone (bgh).
4.) Avoid processed foods.
5.) Avoid artificial food additives of all kind, including artificial sweeteners and MSG.
6.) Avoid all varieties of ‘unfermented” soy and processed soy products.
7.) Switch to natural brands of toiletries.  You can find these at either your local health food store or you can search online.

Review  Our Stolen Future, probably the best resource on this topic

** For more information on xenoestrogens, clicks HERE.

 

 

WhatNext.com – a gr8 site for figuring out next steps…

Navigating what I call the "cancer-maze"

 

I’m obsessed with WhatNext.com…  it’s an interactive website (and support network) that connects those touched by cancer with peers, experts and organizations that can help give guidance on possible next steps- and its presented in an easy-to-digest format which is KEY and candidly, unusual in the world of cancer.

 

Here’s the dealio (as my daughter always says)

Being told that you or a loved has cancer is life-altering and devastating, and that’s an understatement.  Add in the fact that navigating a treatment plan and knowing about, much less making sense of the options, the information & the resources that exist to help a cancer patient and their caregivers makes a difficult situation (again, understatement) even more challenging and unbearable.  This is why I created CancerHAWK and why David Wasilewski built WhatNext.

 

In a nutshell, WhatNext helps patients, caregivers or anyone touched by cancer make sense of the “cancer-maze” by connecting them to the people, perspectives and resources they need when they need them.

 

On WhatNext, you can share details about your cancer journey (anonymously or not) and WhatNext will instantly connect you to others on a similar path – and to relevant resources based on your specific situation or geographic location.  It’s so simple to set up an account and even easier to input your relevant information.

 

To “meet” others who are walking in your shoes, WhatNext offers the following options to help select the best peers for you to connect with…. Diagnosis; Role (patient, caregiver, family/friend, Lost a loved one to cancer, spouse/partner, etc); Stage of Cancer; Stage of Treatment; Age; Gender: State.

 

WhatNext also has a “Question” Section where you can post any question and get it answered from others in the cancer community.

And since I’m resource-focused, I LOVE this part-  Resources, either in your geographic region or based on your diagnosis, will automatically be provided to you.  All the resources listed are American Cancer Society approved so you know they are legit.

 

Check out… WhatNext.com - It’s a great site for anyone trying to navigate their way through a diagnosis of cancer.  It’s a great site for helping to figure out “What’s Next?”.

SAM Fund helps Young Adult Cancer Survivors

ATTN:  Young Adult Cancer Survivors

You’ve just beaten a diagnosis of cancer and now it’s time to get on with your life. Oh yeah!  But in addition to the common challenges facing most 20 & 30 year olds (like paying off school loans, finding a job, meeting everyday expenses, etc.), these challenges are often compounded if there’s a history of cancer. When many young adults are finished with treatment, medical bills may have piled up, they are now too old to be on their parent’s insurance, and the debt starts spiraling out of control… but there’s help….

 

The SAM Fund provides financial assistance to young adults as they move forward with their lives after cancer.  Grants & scholarships can cover a wide range of post-treatment financial needs, including (but not limited to): current and residual medical bills, car and health insurance premiums, rent, utilities, tuition and loans, family-building expenses, gym memberships and transportation costs.  In 2011, SAM Fund awarded a total of $135,000 in grants and scholarships to 92 young adult survivors all over the country.  BTW, SAM Fund stands for Surviving And Moving Forward.  LOVE IT!

 

2012 Application Process opens in June.  Here’s how it works:

1. On their website, they have an “Inquiry Survey” which will let you know if you qualify.  Applicants must be between the ages of 17 and 35, finished with active treatment and residents of the United States.  

2.  Anyone interested in applying must first submit Part One of the application (which will be posted on their website in June, 2012). After a review period, selected applicants will then be invited to submit Part Two. Those applicants will be notified in November as to whether they have received a grant.

To learn more, check out their FREE webinar called SAM Fund Grants 101.

Kickin’ some mASS…

If you are a young adult (ages 15-40)newly diagnosed with cancer or any sort of tumor or are a loved one of a young adult with tumors, check out mAss Kickers, an amazing resource dedicated to helping serve the young adult cancer community.

 

Here’s the dealio (as my daughter always says)…

Every year, over 70,000 young adults between the ages of 15-40 are diagnosed with cancer.  Because of their age, young adult survivors face a variety of unique challenges… they are caught in between the world of pediatric oncology & adult oncology; they typically have to manage re-entry into school or the workforce after cancer; they may face certain insurance coverage issues (once students graduate, they are usually required to be removed from their parents’ insurance policies & finding new coverage is no easy task); infertility as a result of treatment & neurocognitive effects or secondary malignancies are also major concerns.   The mAss Kicker’s website provides helpful resources that young adults can turn to for diagnosis specific treatment information & assistance, interviews with leaders in the survivor community as well as special articles on treatment perspectives and research.

 

I especially LOVE their group blog…. (and I really, really LOVE Catherine’s posts- she’s one of my favorite young bloggers ever to walk the planet!).  The blog is written by a group of young adult survivors who can totally relate to what you’re going through.  And on the bottom right hand side of their blog, they list a TON of amazing resources specifically designed to help young adult cancer patients- they call it ORGANIZATIONS THAT KICK MASS!  like First DescentsThe SAM Fund, Single Jingles and many others.

I LOVE mAss Kickers’ slogan “Tumors Suck!”  Yes they absolutely do!

WTF is Neutropenia?

White Blood Cell

Neutropenia (n): “granulocyte disorder characterized by an abnormally low number of neutrophils, the most important type of white blood cell“. (Wikipedia)  White blood cell counts can be determined by a simple blood test.

 

Anyone undergoing cancer treatments will most likely experience some level of neutropenia at some point.  You see, white blood cells help our bodies fight against infection.  Cancer treatments often times lower the number of white blood cells in our bodies thus making it harder for our bodies to ward off infection.

 

Here’s the dealio (as my daughter always says)

An infection in people with cancer is an emergency.  In fact, infection can lead to hospitalization and even become life-threatening if not attended to so follow the advice below…

 

1.  Call your doctor right away if you have a fever 100.4 or higher.   This could be a sign of infection.  Don’t automatically take tylenol or aspirin unless your doctor advises you to do so, as these meds can mask what’s really going on.

 

2.  Find out from your doctor when your white blood cell count will be the lowest as this is when you are at greatest risk of infection. During this time, take precautions like avoiding crowds or people with colds; washing hands often; wearing protective gloves when handling raw meats, gardening or cleaning up after pets.  Make sure that all food are properly handled, washed & thoroughly cooked.  Our doctors even advised Alan to avoid raw vegetables during “his time of the month” as we called it.  And we even asked our friends to stay away if they weren’t feeling well or have a cold.

 

3.  If you have to go the emergency room, it’s important to tell the person checking you in that you have cancer and are receiving chemotherapy.  If you have an infection, you should NOT sit in the waiting room for a long period of time with other sick people.

 

4.  Look into acupuncture & tai chi… there is scientific data available that these modalities can have a help stimulate white blood counts.  (thanks Darian, amazing naturopath at Cancer Treatment Centers of America for sharing this.)

 

Remember, an infection in people with cancer is an emergency.  It’s best to avoid any situation that increases your risk of infection.  Also know that if your treatment schedule has to be postponed by a few days because you are neutropenic, don’t worry.  Talk to your doctor.  I’ve always been told that a few days here or there won’t make a difference in the overall success of treatment.

WTF is a “Superfood”?

Superfood (n): A term used to describe food with high nutrient or phytochemical content that may confer health benefits, with few properties considered to be negative, such as being high in saturated fats or artificial ingredients, food additives or contaminants. (source: Wikipedia)

 

Although there is no official “superfoods” list, there are foods that are widely recognized as having superior health benefits such as quinoa, kale, goji berries, flax & chia seeds to name a few.  When it comes to cancer specifically, many experts believe that incorporating certain ‘superfoods’ into your diet can help prevent tumors from starting and even halt their growth.

 

Below are a just a few superfoods that have shown to positively impact cancer – whether it be preventative or to halt tumor growth:

* Berries, Berries & More Berries.  Blueberries contain the highest antioxidant level of all berries.  The active ingredient in acai berries has shown to destroy cancer cells according to researchers at University of Florida.  Cranberries have shown to make ovarian cancer tumors more sensitive and therefore more responsive to chemotherapy.  Raspberries & strawberries have also shown to have good cancer fighting properties.

 

Garlic, onions, leeks contain “allicim” which has shown to help reduce the risk of many common cancers.  Additionally, according to the National Cancer Institute, an analysis of 7 different large-scale population studies showed that the more raw and cooked garlic a person consumed, the lower his risk of stomach and colorectal cancer.   BTW, some experts say before using garlic, chop it up and let it be exposed to the air for a few minutes to release more allicin.

 

*  Cruciferous vegetables like broccoli, cauliflower, cabbage, kale, bok choy & brussels sprouts can help strengthen our bodies.  Studies have shown that one of the phytochemicals found in cruciferous vegetables – sulforaphane – can stimulate enzymes in the body that detoxify carcinogens before they damage cells.

 

*  Tomatoes contain lycopene, which has shown to lower the risk of many different cancers, particularly prostate, breast, lung and colon cancer.   Cooking tomatoes seems to enhance the effects of lycopene so cook away.  BTW, avoid tomatoes in tin cans (buy fresh or tomatoes in glass jars or paper containers).  The linings of tin cans contain bisphenol-A.  When coupled with the acidity of tomatoes, a reaction results causing BPA to leach into our food.

 

*  Apples Remember that old saying “an apple a day keeps the doctor away”?  Well apparently there’s truth to this. Apples can suppress your appetite for weight control; lower cholesterol; and have anti-cancer benefits.  According to Dr. William Li, President & Co-Founder of the Angiogenesis Foundation, Red Delicious and Granny Smith apples have twice as many cancer fighters as Fuji or Golden Delicious apples.  For Dr. Li’s complete list of foods that anti-angiogenic foods or foods that cut off the blood supply to cancerous tumors, click here.

 

*  Certain herbs and spices help boost our immune system and also have natural anti-inflammatory properties.   Incorporate  curry, cinnamon, turmeric, ginger, rosemary, chive & basil in to your diets.  Curcumin, the spice that makes turmeric yellow, has shown to inhibit tumor growth but must be used with caution as it can make anti-cancer drugs less effective.  Always talk to your doctor before taking any supplements including curcumin supplements.

 

*  Apricots, barley, citrus fruit, fiber, figs, fish oil, fish, ginger, green tea, spinach, and seaweed also have shown the ability to slow tumor growth in various ways.

 

(sources:  WebMDEat to Defeat; Cancer Treatment Centers of America; Caring.com)

What’s the Dealio with The Cancer Treatment Centers of America?

Patients ring this bell to signify the completion of their radiation treatments.

 

I’ve learned that for better or worse, when it comes to cancer, things rarely are as they appear to be.  After all, cancer is tricky.  And each person’s cancer is unique to them.  The treatment regimen that works for one person may or may not work for another person.  Test results (again for better or worse) often times come back differently than expected.  That’s just the nature of cancer.

 

But there is something in the world of cancer that truly IS what it appears to be… The Cancer Treatment Centers of America (CTCA).  CTCA practices personalized cancer care with an integrative team approach, and they do anything they can to make the journey a little easier and a little lighter, with the hope of making the end result more successful.  I have to say that I was really impressed (a feat not easily accomplished might I add) after spending 2 days at their Phoenix Center.

 

Here’s the dealio (as my daughter always says)…

A couple of MAJOR things really impressed me:

CTCA will fly the patient & caregiver out to one of their 4 (soon to be 5) facilities for an initial consultation FREE of charge.  And CTCA arranges & pays for all travel expenses for the patient for all subsequent treatments & appointments.

 

*  Every patient at CTCA gets a team of at least 5 professionals assigned to care for them including a medical oncologist, clinic nurse, registered dietitian, naturopathic clinician and nurse care manager.  Of course, surgical specialists, radiation oncologists, gastroenterologists, etc. will also become part of the team if their areas of expertise are required.  And get this, they all talk to each other and create a joint plan of action together.  Each doctor and specialist comes to your waiting room.

 

CTCA takes a personalized approach to treating cancer.  They will run genetic and biomarker testing on tumors when needed.  They will prescribe off-label drug treatments (drugs that are not part of the standard protocol) if the standard of care is not doing the job.  Of course, there needs to be evidence supporting it’s use though.

 

*  Anyone who has undergone any sort of cancer treatment knows that finding satisfying foods that nourish the body can be a huge challenge.  According to the American Cancer Society, approximately 20% of cancer patients die from malnutrition.  CTCA chefs & nutritionists work with patients to make sure they stay nourished with made-to-order smoothies (Detox Delicious is my favorite GREEN smoothie) and healthy meals made from 100% organic ingredients that rival some of the finest restaurants. (It ain’t typical “hospital food” that’s for sure).  Plus special dietary needs will be accommodated.  Oh, there’s Starbucks coffee too.

 

* CTCA accepts most insurances (not medicare or medicaid though).  All costs are pre-determined so there will be no surprise charges.  Acupuncture, reiki, chiropractic and other mind-body work are included, even if these services are not covered by your insurance carrier.

 

* CTCA has cutting edge, state-of-the-art technology (Cyberknife, TomoTherapy®, Cord Blood Transplants, Calypso® 4D Localization System™/GPS for the Body® genetic & molecular profiling & much more).

 

* Then there’s tons of other super nice amenities offered including:  on-site pharmacy; on-site boutique specializing in wigs, head shavings, head coverings & mastectomy products- all sold at 30% below retail; on-the-premises spa;  visiting hours are 24×7; really nice hospital rooms that are ICU-capable and nearby subsidized hotel rooms for approximately $40 a night; massage & pampering for caregivers; only green products are used to clean the center; all medical records & results are 100% digital; really nice infusion bays; pet therapy dogs, free laundry services; the list goes on and on.

* Once active treatment is complete, CTCA Survivorship Program lends support to survivors as they get back into the swing of things.

THE BOTTOMLINE:  CTCA treats every patient as a person, not a number.  They take personalized cancer care to a new level…

p.s.  The President & CEO of CTCA Phoenix is an 8 year sarcoma survivor… how fabulous is THAT!

“Detox Delicious” from Cancer Treatment Centers of America

Rob Harris of Robcares.com- amazing resource for caregivers- drinking Detox Delicious, his 1st green smoothie ever

 

This is an amazing green smoothie recipe called “Detox Delicious” created by the chefs & nutritionists at The Cancer Treatment Centers of America (CTCA).  Detox Delicious is a natural & safe beverage that helps cleanse without stripping the body of benefits.  And it’s delish!

Blend together in a high powered blender:

1/2 cup parsley

1/2 cup spinach

1/2 cup broccoli

Juice of 1 lemon

1 Tbs of Tahini (sesame paste)

1/2 clove garlic

1 cup of green apple (cored & seeded)

1/2 cup vegetable stock

 

Cancer Treatment Centers of America prepares all of it’s own food and uses only high quality, organic ingredients.  I spent the past weekend there and I can honestly tell you that their food rivals some of the finest restaurants in town and it’s healthy to boot. Quinoa & spelt & kale OH MY!

BTW, every patient at CTCA receives a nutritional assessment and an individualized meal plan designed to help prevent malnutrition, reduce side effects of treatment and enhance his or her well-being.  Very cool!